Parejas de pacientes con una enfermedad crónica. Estudio narrativo sobre la hemofilia

When a family member has a chronic disease, this group becomes the first support network, which causes an allocation of roles and tasks to cover all functions. In Mexico and many other countries lies with a woman (usually the mother or wife) this responsibility, so this study aimed to analyze the narrative of women partners of patients with hemophilia (PWH), to investigate the repercussions of this chronic disease in their relationship. Participated five women whose partners have hemophilia, from 18 to 51 years, four in marriage and one in courtship, whom apply a narrative interview. The instrument used is the narrative interview. The corpus was subjected to a structural semantic textual analysis through the ALCESTE program, which emerged seven kinds of lexical universes. The factorial analysis of correspondences extracted two factors: the couple's adaptation to the disease and attitude toward the disease. The association with the illustrative variables show that participants with an enduring relationship, however relate more conflict, are satisfied with their relationship. In conclusion it is thought that the couple plays an important role in the health-disease process and it is important that they has adequate space for expression and joint development.